Comments on: The Medical Advice That Almost Killed Our Baby

By: Kari

Kari — Wed, 18 Nov 2009 19:02:01 +0000

Oh my goodness! I'm so sorry to hear about this. I hope he is doing much better by now. I will keep you guys in my thoughts and prayers. I'm not even sure what to think about that nurse's advice. Scary to think that the professionals who you put your trust in don't always know the right answers.

Our youngest (now age 9) started having seizures when he was 5. They were not fever-related. All his tests (MRI, CT, EEG) have been normal and they do not know the cause of the seizures. Since age 5, he has had around 20 seizures, luckily, they have all happened during the night during his sleep. But, still, it is just about the scariest thing to ever witness. The doctors are hopeful that it's going to be something he outgrows. He is still on anti-seizure medicine and hasn't had a seizure since last December.

Take care!
.-= Kari´s last blog ..More Holiday Shopping Gift Ideas '09 =-.

By: Ruthie

Ruthie — Fri, 13 Nov 2009 16:42:11 +0000

I have great respect of the medical staff even to the house doctor but never rely to pay seriously to them, they often give you anxiety to crack down your head. here in holland some of medical workers few are sluggish and some are likely insane to give you expiremental medication that is not supposed to. if you got outstadding good doctor keep it nicely.

I pray frank doing fine in progress..i really tell you i hate kids to see like these and i never watch anymore with gray anatomy even the actor was cute.

God bless!
.-= Ruthie´s last blog ..Classmate Is that You? =-.

By: Daddy Forever

Daddy Forever — Wed, 11 Nov 2009 16:19:19 +0000

It was 103. It's high, but I've actually seen higher with the other kids.

By: Virginia777

Virginia777 — Wed, 11 Nov 2009 08:16:40 +0000

What a scary ordeal! Wow! What did you say his fever was? I'm sooo glad he's getting better and I so, so, so hope the tests come out that he's doing great. .-= Virginia777´s last blog ..God Gave Me A Break With Ryan =-.

By: Daddy Forever

Daddy Forever — Wed, 11 Nov 2009 07:31:34 +0000

He seems better, but we'll know more after his tests.

By: Susan Anderson

Susan Anderson — Wed, 11 Nov 2009 06:26:08 +0000

My two year old was in the hospital last February severely dehydrated and had a febrile seizure. It was a scary experience. I hope your little one gets better soon!

By: Daddy Forever

Daddy Forever — Wed, 11 Nov 2009 01:42:24 +0000

At least he's smiling again. That's something.

By: Leslie

Leslie — Tue, 10 Nov 2009 20:58:53 +0000

I cannot imagine going through what you did. I would have followed the advice nurse's instructions, too and probably felt just as you and your wife do now. I hope Little Disney is feeling much better and that you never have to go through something like this again. .-= Leslie´s last blog ..And Miles To Go Before I Sleep =-.

By: Daddy Forever

Daddy Forever — Tue, 10 Nov 2009 15:44:30 +0000

I think dealing with situations like this is the hardest part of being a parent. Hopefully we won't have to go though this again.

By: Daddy Forever

Daddy Forever — Tue, 10 Nov 2009 15:39:54 +0000

Our doctor doesn't think it was stupid advice. He said it was a judgment call, but he would have gone with the Tylenol. Plus it would be hard for us to prove in court that our baby wouldn't have had seizures even with the Tylenol.

By: Anna

Anna — Tue, 10 Nov 2009 15:27:53 +0000

This post brought tears to my eyes and made me feel like I was going to throw up. The love that we feel for our children and the fear that we experience when they are in danger is so visceral that it really can't be explained in words. I am so glad that Baby Disney is okay. .-= Anna´s last blog ..Our Talented Girl =-.

By: Kay

Kay — Tue, 10 Nov 2009 14:18:06 +0000

My heart breaks. You could sue that stupid medical nurse. Argh! I hate stupid medical staff. They're not supposed to be stupid about things like these. It could cost a life. I hope lil Disney gets well soon. B is sick too. .-= Kay´s last blog ..B is sick ... =-.

By: Daddy Forever

Daddy Forever — Tue, 10 Nov 2009 03:59:54 +0000

If only we had kids that never got sick. Life would be a lot easier and less stressful.

By: Desert Songbird

Desert Songbird — Tue, 10 Nov 2009 00:55:38 +0000

When your child is so ill, it's difficult to know who to trust. When one medical person gives you advice that goes against your intuition, do you trust your intuition, follow the advice, or seek another opinion? Hard to tell.

We are always better parents in hindsight, but who knows? Sometimes the lone dissenting opinion turns out to be correct, even though it might seem to be bad advice.

I'm glad your baby son is feeling better; tell your wife not to beat herself up over this. I know there are times when I still feel guilty over a hospitalization that my son had when he was six months old, but I also know I made the best decision I could given the circumstances at the time. She really needs to forgive herself.
.-= Desert Songbird´s last blog ..Dona Nobis Pacem =-.

By: Daddy Forever

Daddy Forever — Mon, 09 Nov 2009 20:30:35 +0000

That's why my wife is upset with herself. Her gut instinct told her to give Tylenol to our baby, but the nurse told her not to. And that's why I'm upset with the advice nurse.

By: Daddy Forever

Daddy Forever — Mon, 09 Nov 2009 20:28:17 +0000

It was very scary. We've never had to call 911 before. Hopefully, we will never have to again.

By: Chris H

Chris H — Mon, 09 Nov 2009 20:05:10 +0000

Next time you should go with our gut instinct. Giving him anti fever medication may have stopped him overheating and then he might not have had the seizures. Or not… you will never know now.
I would be upset with the nurse anyway.

By: Holly Schwendiman

Holly Schwendiman — Mon, 09 Nov 2009 17:17:04 +0000

I'm so grateful he's okay. These medical moments can traumatize us all in ways you can't understand, just experience. I hope your wife can find peace in knowing she did all the right things to help her baby. So glad you're all recovering.

Hugs,
Holly
.-= Holly Schwendiman´s last blog ..Halloween Part II =-.

By: Daddy Forever

Daddy Forever — Mon, 09 Nov 2009 15:58:25 +0000

We're still exploring our options, but we have a feeling the HMO will tell us the baby could still have had seizures even if we gave him Tylenol.

We usually give our kids Tylenol for fever, but we figure the nurse knew what he was doing.

By: Eric

Eric — Mon, 09 Nov 2009 15:41:25 +0000

I had to reread the part about withholding tylenol because I thought it was a weird thing to do especially if the baby has a high fever. Having four kids myself, it's almost instinctual to break out that medicine when our kids have fevers. I'm really glad that he's doing better. I will be praying for him and your family for negative results on the upcoming tests.

Are you going to call the HMO Nurseline and talk with someone. Whether it's to let them know the displeasure personally or not. But to let them know that the information they are giving is potentially dangerous.

By: Daddy Forever

Daddy Forever — Mon, 09 Nov 2009 15:23:33 +0000

I hope your baby's tests turned out ok. Our baby had a cat scan in the hospital and that came out fine. Hopefully everything else comes up good too.

By: Daddy Forever

Daddy Forever — Mon, 09 Nov 2009 15:21:16 +0000

Me too. Otherwise someone else could go through the same thing with their baby.

By: Daddy Forever

Daddy Forever — Mon, 09 Nov 2009 15:19:31 +0000

We would have been better off not calling the advice nurse. If we didn't call, my wife would have given Tylenol to Little Disney.

By: Lisa

Lisa — Mon, 09 Nov 2009 14:41:16 +0000

Our toddler had to have an EEG and a CT scan for a seizure last week. It was scary and his seizure was way shorter than your baby's and was from a definite source- a fall. I feel for you. .-= Lisa´s last blog ..More Random Friday than usual =-.

By: Mrs. C

Mrs. C — Mon, 09 Nov 2009 13:00:12 +0000

WOW!!! I'd have followed medical advice, too. I hope this gets looked into. .-= Mrs. C´s last blog ..Dear Teen Facebook Users =-.

By: peepnroosmom

peepnroosmom — Mon, 09 Nov 2009 12:42:45 +0000

Oh my goodness!
The advice nurse was probably reading from a manual that has a flow chart in it. If baby has fever over a certain temp. then give Tylenol. If baby is vomiting then do not give Tylenol. I'm sure they don't take in every single detail of the child's sickness to make their decision. That's what is sad. Like your wife, Mom's rely on the advice nurse to give them Good Advice. Not read from some chart or manual. Every situation is different.
I'm glad to hear that Disney is feeling better. What a scary time for you and Mommy!
.-= peepnroosmom´s last blog ..Welcome Earthling. =-.