Little Disney turned seven months old last Saturday. He’s still cute and has a great smile, but his life has not exactly been filled with rainbows and unicorns. At night, Little Disney wakes up hungry every two hours like a newborn. He’s been to the doctor’s office many times, had blood work done three times, been to a dermatologist and an allergist, and now has to go see a pediatric gastroenterologist. Our baby hates formula, solid foods, antihistamine medication, and being fed with a bottle. Little Disney also has acid reflux, which makes him spit up puddles of food. And he also hates his infant acid reflux medication, which costs a lot but doesn’t seem to help.
As I mentioned previously, Little Disney has really bad eczema. In July, we found out he was allergic to milk, eggs, and peanuts. Last week, we learned he was also allergic to tomatoes and shrimp. Hopefully there isn’t anything else our baby is allergic to because I don’t think he has any more blood left to give to the lab vampires. Plus the food he’s already allergic to causes his rashes to flare up, which make him very cranky. And when baby is cranky, mommy and daddy are cranky too.
According to our doctor, our baby also has Failure To Thrive (FTT) Syndrome. I thought the doctor was making it up so I googled the term. According to Wikipedia, Failure To Thrive Syndrome is a real medical term that means poor weight gain and physical growth failure over an extended period of time in infancy. That sounds about right. In seven months, Little Disney has dropped from 75-90 percentile to the 17th percentile. At his current rate, Little Disney will be below the 10th percentile by the time he’s nine months old and below the 5th percentile by the time he’s one.
The doctor is very concerned about his FFT. That’s why he referred Little Disney to a pediatric gastroenterologist outside of the HMO network. If the doctor didn’t tell us he might have to eventually hospitalize our baby and stick a feeding tube in him, I wouldn’t be very concern about his slow weight gain. All of our kids are on the skinny side, but our other three children didn’t struggle as much at six months (Little Monkey and Spiderboy were around the 50th percentile and the Little Princess was at the 25th percentile).
Our doctor seems competent and he calls us weekly to check up on Little Disney. None of our other doctors have ever called us at home. We usually have to make an appointment to talk to the doctor. It’s nice to have a doctor like that, but he’s also freaking us out with his concerns. It’s probably nothing, but it sucks being a dad when your kid has health problems and you can’t do anything to help him.